Lessons Learned

It is humbling to realize how many people are out here, floating about in the blogosphere, who will take the time to try and make a little bitty redneck girl feel better.

For all the well wishes, good thoughts and prayers you sent in my direction, and that of my father's, I thank you. I really, really thank you. All of you. For every key stroke you sent my way, I want you to know it helped. It all helped.

My dad is doing much better. As of yesterday, the doctor's pronounced him stable and took him off the critical list. It was a good day.

Strike that. It was a great day.

Sitting in that ICU room, day after a day, brought back a lot of memories. Some pleasant, other's not so much. But as I struggled with my fear and my memories, I realized something. I would survive this. Even if my dad didn't.

I do wish, however, he had chose another month; a different time, to get sick. With my Shalebug's first year anniversary of his passing approaching in less than two weeks, I really didn't need a reminder of how fragile life is. Or how cold October could be when standing at the edge of a grave in a pretty cemetery.

But now that my dad is fighting to return to his old, ornery self, I thought I would take the time to share with you, dear internet, some of the things I have learned these last two weeks, while sitting in various hospitals, staring at my dad and my husband.

First off, I know now, that no matter how sick my husband is, how legitimate that illness is, I will still be annoyed with him for getting sick in the first place. Heaven help him, he can do no right. I would apologize for this, if I thought I could change this about myself, but since he tends to be a big baby and I tend to be a heartless woman, I'll just choose to accept this quirk about myself.

Secondly, the ICU is a scary place. It doesn't matter how cute the male nurse named Todd looks in his green scrubs, the beeps, tubes, machines and smell of death is still scary.

I learned septic shock accounts for 25 percent of all ICU bed utilization in North America, with a mortality rate of greater than 70 percent.

I learned the leading cause of death in non-coronary ICU patients is septic shock. I learned that sepsis is the tenth most common cause of death overall, in North America.

I learned that watching a dialysis machine take urine out of blood is truly a miracle. Especially when you are packing around a fussy six month old baby who shuts up (finally!) to watch the whirring and beeping of said machine.

I learned it is always funny, no matter how many times I see it, to see an old man waddle about with his back side hanging out from a hospital gown. I also learned an old man's rear is not near as pretty as a thirty year old man's.

Sadly, I learned that watching your father fight for his life, while very scary and humbling, is not nearly as scary as watching your child fight for his life. There is still nothing scarier than rushing to emergency with your sick child in your arms, only to walk out of the emergency room hours later with nothing but a plastic bag in your hand.

I also learned that hospital food is never palatable, my annoying aunt is even more annoying in the face of great crisis and that as screwed up as my family really is, we really love each other. Warts and all. Even when my 6'4" brother hogs the tiny sofa and snores like a lumber jack. Even when my sister uses my toothbrush and deodorant with out asking. Even when my mom shoots pop out of her nose, thereby spraying me with it. Yummy.

I learned there is no better sound than that of my dad finally being taken off the ventilator and telling the nurses he is going to shove his boot up their asses when he gets out of this god forsaken place.

I learned how blessed I am. No strike that. I remembered how blessed I really am. I already knew I was blessed. I just forgot it momentarily.

Crossroads and Choices


Before our Shalebug flew the coop and grew his angel wings, he was becoming quite the little character. He could hobble about on flat surfaces, he could crawl quick as you could blink an eye and he was an expert at giving high fives. After years of watching him be nothing more than an eating and pooping baby machine, it was thrilling to watch him finally "get" things. As Boo said, it was like watching someone turn on a light switch.

That is not to say he was learning how to tie his own shoelaces or suddenly knew his ABC's. Cripes, he still hadn't uttered a word in his almost five years and I was fairly sure he never would. He couldn't put the pieces of a baby puzzle in the holes and I shudder to think of how hard it would have been to hold a pencil. All that aside, he was learning, in leaps and bounds.

And it was fun to watch. Just like it was when Fric and Frac learned how to walk and talk. Or finally master toilet training. (All though, we still haven't managed to not pee all over the freaking toilet. And it has been nine years, dear internet. That's a lot of pee to be wiping up.)

Somehow, with the Shalebug, the rewards were all the more sweeter. I think it was because I had been around this block before. I was older and wiser and more aware. And I saw my boy struggle to accomplish the very same things his siblings mastered with nary a thought. t was a hard fought battle, and victory was often denied to my boy. But when he mastered something, the world was an amazing, brighter place. For all of us.

We miss that. Not just me, but his father, and his brother and sister. We miss the joy we felt when he accomplished a small task. We miss him.

Part of the reason I took the summer off blogging was to find me. Suddenly, at 30, I found myself at a crossroads, with no visible path. All of a sudden the world was my oyster, no longer confined by the constraints of having a handicapped child. Suddenly, I was free to leave the kids, and just hire the 15 year old neighbor to babysit. I didn't have to worry about car seats and wheelchairs and feeding tubes. Medication schedules or teacher aides.

I could get a job without worrying about finding a daycare to suit my child. I could go back to school. I could do anything - except take care of my Shalebug. Which is the one thing I want most in the world.

It didn't bother me that one day I would have to let him go, perhaps put him in an adult facility. I couldn't predict the future, and I refused to imagine the worst case scenario. I refused to bind him by my imagination. Nor was I living behind rose colored glasses. I fully accepted that I would be chained to a grown up child for the rest of my days, as would his siblings.

But none of this mattered, because of the love we all felt for Bug. It was, and still is, staggering.

Leaving me at this crossroad, scratching my head, and wondering what the hell am I going to do with my life?

So, here in my piece of paradise, I have watched Fric and Frac grow and develop. Laugh, cry and argue. I have sat and spent hours researching jobs, careers, educational paths. I have been offered a reporting position at the local television news station. My career as a professional gardener has flourished into what could be a very lucrative career if I choose. The school where Bug went to has offered me an aide position.

I have options. I have the finances to pursue those options. I have more choices than I could shake a stick at. And the only thing that interests me is being a mommy.

But getting preggers again is an option that can't be placed back on the table. Which leaves adoption.

Many hours of soul searching and nose sniffling have been devoted to the idea. Could we do it? Is it fair to Fric and Frac? Would the rest of the family accept a child that didn't have albino white hair and sky blue eyes? It was a hard battle for Boo and I, to have the extended family accept Bug. Could we ask them to do it again, with a child that had none of their blood running through their veins?

Did we want to?

The answer is simply, yes.

So we have started the adoption proceedings. And our application is being fast tracked because we have applied for a special needs child. None of those healthy kids for us. No sirree. We only want the broken ones, Ma'am.

So I, the Redneck Mommy, who am not a redneck at all, am expecting my fourth child. I'm scared terrified of what the future holds for us. But I haven't been this exhilarated in, well, ever.

We have faced our critics, and been embraced by our supporters. Sad to say, the numbers are even on both sides.

No, we are not trying to replace our dead son. Yes, I'm sure I want another handicapped child.

Why? Why not? I counter. Because the love Bug gave us, and the skills he taught us was a gift I want to be able to share with the world. The strength we gained as a family unit has cemented our bonds of love. It has made us all into better people. He shaped his siblings into very special kids. I don't want to spend the rest of my life just remembering those skills.

I want to use them. As a tribute to my boy, who was the strongest person I knew. He taught us to how to love.

Thank you, Skjel. Mommy loves you.

It Would Appear I Have Some 'Splaining To Do...

First off, any one who is looking for some funny, you might want to keep on looking. Come back tomorrow. I have some goodies I have been saving.

That said, I offer my apologies for my absence for the blogosphere. You see...

Once upon a time, I was a woman with yellow and brown hair, who had stripey lines on her face and saggy boobs (all thanks to her darling children) who was extremely happy. I had the man of my dreams and the three best kids in the world. And then one night, suddenly, my youngest baby died. No explanation, no preparation. Just 'Poof!'

We grieved. We cried, we hugged, we tried to heal. And on the surface, that is exactly what was happening. My husband was doing his best at coping and my kids bounced along like little rubber balls. I began to use my computer to make new friends and try to remember the joy I once felt. I knew I couldn't be swallowed by the darkness that threatened to pull me under every day.

So I blogged, and read other blogs, and I gardened. I poked holes in my nose and painted my backside with a memorial. I ran. I did everything except mop the floor. (Really. I would beg my girlfriend to come and do it for me. I hate mopping.) The one thing I didn't do was let go of my baby.

Then school let out and my children were around every day. Wanting to do the things they did last summer with their baby brother. And it became too much for me. You see, I am an outdoorsy type of gal. Which meant my kids are outdoorsy types of children. Even the handicapped ones. But it seems that I hadn't made peace with my twenty acre paradise. Every where I looked I have memories of the Shalebug. And it overwhelmed me.

I had a mini breakdown. I screamed and cried and railed against the world. I pounded on my husband's chest with my fists so that he could feel the pain that was tearing my soul apart. I am ashamed that I treated him so poorly. That I diminished his grief just because he was actually coping better than I was. That night no one slept. The kids cried and Boo and I cried.

The next morning I went to see a therapist. I couldn't behave this way and help my kids. I couldn't behave this way and expect my husband to stand by my side. Or not kill me. So I sought help. Which was the hardest thing I have done since I buried the little guy and walked away from him for the final time.

Things got better, but I became overwhelmed at the idea of blogging. I avoided my blog like the plague. I didn't check the mail, nor did I read any other blogs. I felt guilty that I abandoned you dear internet, but at the same time I just didn't have the energy to come back to you.

Not only did I let blogging go, but I let my garden go. Funny the two most important hobbies I have, writing and gardening, I just couldn't face. My poor garden looks like a jungle. The upside to it, is the moose are very happy with me.

Along the way, other things happened. The dreaded bridesmaid dress was worn. Shudder I survived. I managed to mend fences with my parents. I lost a friend and found a new one. I pulled my family close around me and tried to enjoy the life I have been granted.

And I grew stronger. Don't get me wrong. I still feel the pain of his death like it is a chain being yanked around my neck. I still wonder if I will ever really feel joy without feeling guilt. Without wishing he was with me. And I know hard times lay ahead. His one year anniversary is right around the corner. But now I can sit down and smile. Flex my fingers and find my funny.

Imagine my surprise, when last night on a whim, I decided to check out my mail. Over a hundred messages awaited me. And only five were junk mail. I just about fainted. I absolutely did not realize any one would even miss me. Ironically, I get more hits when I don't blog than when I do....I'm trying not to look too deep into that.

If you will still have me dear internet, I am back. I'm lurking about, doing my best to take it one day at a time. Please don't be offended if I don't comment regularly or at all, just know that I'm here. Living and breathing. Surviving. And now, blogging.

I promise not to go away with out letting any one know that I am okay.

And if something happens to me that prevents me from blogging, I promise to have Boo peck out a message with his two hammy fingers to let you all know what's up.