Breathe

Today is my son's seventh birthday.

There will be no birthday cake. No party, no silly hats, no presents stuffed in gift bags or wrapped in dollar store paper.

There is no boy to blow out the candles and spit all over the cake.

Breathe.

Instead, there is a mother who quietly mourns and wonders if she will ever find the thread to mend her broken heart.

A mother who mourns long after every one else has moved on.

A mom who has to remember to breathe through the hurt and push past the pain to appreciate what still remains.

Breathe.

It is a lonely day today.

Happy Birthday Bug. We miss you. More every damn day it seems.

Breathe.


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May my kiss be carried to you by a thousand angel wings, Bug.


Wait and See

I never wanted kids. I never played with dolls and dreamed of having my own little minions to one day boss around and mold into personal slaves love and cherish. I never dreamed of white picket fences, home baked cookies, pigtails and cute little outfits.

I never gave parenting much thought at all. Up until the moment I murdered a rabbit peed on a stick and faced the reality of looming motherhood, I never figured I was cut from the maternal cloth so many of my friends seemed to be made from.

Until that moment, the moment the little stick showed it's plus sign, it never dawned on me what having children would, could bring to my life. I never understood the blessing of children. I just saw snotty noses, dirty diapers and stressed out moms. I didn't see that as a future I could embrace.

Some where between my own babies caterwauling, snotty noses and dirty diapers, I discovered the joys of parenthood. The sweet coos of a sleeping baby, the robust giggles of a toddler and the gap tooth grins of my kids charmed me into thinking I could do this. I could be a mom. And like it.

Then Bug was born and the rules were changed. There were no late nights nursing a sweet infant back to sleep. It was all about hospitalizations and doctors and medical procedures. It was about scary diagnoses, impossible hopes and fighting fears.

When other moms were rousing themselves for late night feedings and rocking their babes back to sleep, I was stumbling in the dark, stubbing my toes and trying to figure out which monitor was shrilling it's alarm in the wee hours, warning me of Bug's imminent doom.

While other moms dealt with sore nipples or dirty bottles, I was trying to lift my kid out of his specialized high chair or his crib without trying to yank out his gastric feeding tube.

As other moms struggled with solid foods or temper tantrums, I was juggling a medication schedule that would give any nurse a headache and trying to keep my other two kids from hiding the plastic syringes in the couch cushions.

While other moms worried their toddlers weren't playing nice with others or were being bullied on the playground by an obnoxious sand-thrower, I was trying to get other parents and children to simply see and acknowledge my child. Other moms worried about preschool, princesses and television programs. I struggled to fit the damn wheelchair in the back of my car, remember his speech equipment, his splints and wonder if I was going to be on time to pick up the other two children after a day at the hospital.

It was trial by fire and more than once I felt the burn.

Yet I would sell my soul to the devil himself to have one more minute to experience that flame.

In a blink, it was over. And there were two stunned little kids who didn't understand why their brother was no longer banging cupboards in the wee hours of the morn, no longer there to play choo-choo with them.

I'm was left with hard questions and no answers. Just tears, enough to fill an ocean.

As time passes, that ocean gets deeper. And yet, every morning the sun still rises, the clouds still part and the waves from our ocean of loss no longer threaten to topple us over. Instead, they mostly bathe us with the warm memories of a life that was filled with love and joy.

With the adoption looming, and the possibility of a new brother or sister to love, we are all reminded of the little boy absent from our home, yet never from our hearts or our minds. I've found myself explaining to family and friends, again, why we want to walk this path once more.

Why would we want to put our hearts on the line for a child who may never be normal, or healthy or even grow up. Why would we want to wrestle with hospitilizations, medications, therapies and social frustrations.

I nod my head and agree that it's easy not to be able to see past the frustrations and scariness of a disabled child. But, I remind them, it is impossible to forget the joy those children shine with and spread to all who come into contact with them.

Bug made sure of that.

And so will our next child.

That's what I tell people when they ask why we want to adopt such a needy child.

Just wait until you meet him or her. Then you will know.




If Wishes Were Dollars, I'd be Rich

Two years have passed and still you haunt me, my boy.

It's been two years since Bug turned sheet white and non-responsive. Two years since my husband ran out to start the car on a frosty fall evening in the middle of the night. Two years since I looked Boo square in the eye and told him this was the one time I couldn't take my child to the hospital. I wasn't strong enough.

It has been two years since I buckled Bug into his car seat and kissed his forehead, told him mommy loves him, and hold tight. Mommy will make it all better.

Two years since I drove as fast as my car could go, the pedal to the floor. Two years since I hoped I wouldn't hit any animals in the dark, two years since I prayed for just this once to be stopped by a police car, anything not to be so alone with my fear and worry in the dark.

It's been two years since I phoned my husband in the middle of the night, while he waited for a baby-sitter to watch Fric and Frac and told him I was more frightened than I have ever been before, so worried I would fail Bug.

It has been two years since I whipped into that parking lot and felt sick to my stomach. I feared when I opened the door to get Bug out, he would be dead.

Two years since I saw my son's head hang at an unnatural angle, drew a deep breath and yanked him out of his seat and ran into the emergency room, with him hanging limply in my arms. He was warm.

It has been two years since I literally threw him into the arms of a worried nurse and he ran off with my son, calling out a code. Two years since I stood and watched them try and find a pulse, insert a central line, and scream medical terms that I understood all too well.

Two years since my mouth ran dry as cotton and my heart thumped like a rabbit's.

It's been two years since I asked to sit in a dark room and wait to hear any news. I couldn't handle watching his little body lie there lifeless as they tried to perform an act of God and bring him back to me.

Two years since his pediatrician, bedraggled and haggard, with the light from the hall shining behind him, walk into that dark room and just start to weep. Two years before a stream of doctors and nurses entered after him and patted me on the knee and apologised for not being able to save him.

It has been two years since I sat there in disbelief and terror and waited to shed a tear while others around me wept.

It has been two years since my husband ran into that dark room and looked at me with fear and hope in his eyes. It has been two years since I had to muster the strength to tell him he was too late, his son passed away, I couldn't save him.

Two years since I last saw my baby, kissed his face, sang his song and said good bye.

Two years since I walked out of that hospital, childless, with Bug's clothing in a plastic white bag, and Boo by my side.

Two years since I drove home in silence, alone, to face my children.

Two years since I woke them up and told them their brother died.

It has been two years and it still hurts as much as it did the day it happened.

Two years and I haven't stopped missing my Bug.

Two years and I still haven't stopped loving him.

Two years and I still wish every damn day that fateful night had turned out differently.

It has been two years.

I'm worn out with wishing.
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We miss you Angel boy. Thank you for being ours.